This site is devoted to my son, Isaac. In 4 years he has undergone 21 major surgeries, and countless other medical procedures. He is an amazing, loving, resilient little boy - who happens to breathe through a tracheotomy and receive his nutrition via G Tube.
Wow, it’s been a long time! We have been so busy being normal we haven’t had time to update 🙂 Being normal really is an amazing feeling, we were stuck in a crisis rut for so long that we are … Continue reading →
Recently, I was reading a post by another parent in a trach group – this parent was scared, because the “T” word was being used as a possibility for her son. I found myself feeling very angry towards her, I … Continue reading →
I took Isaac to the dentist a few weeks ago, always a fun trip! As he sat in the chair the hygienist pointed out that he was her second trached patient that day. As we talked she started asking questions … Continue reading →
Our days continue to go well, that new colophagus is serving Isaac very well. Sometimes we find ourselves just drifting through days, and through our routine effortlessly. We are constantly on the go and now that the weather is nice … Continue reading →
Isaac is on a pretty good roll here, no major sick scares since summer – that’s pretty impressive for him. He’s making it to school, and Little Gym, and therapy (LOTS of therapy)…. we still get asked a lot about … Continue reading →