Today was the BIG day, Isaac and his sister Talia got to go to the Fresh Beat Band concert, and then meet the band. WOW!! We found our seats and Isaac waited anxiously for the show to start. To say he was mesmerized would not do it justice, he went into what can best be described as a Fresh Beat Band coma……. he couldn’t take his eyes from the stage, no dancing, no clapping, just staring. He clearly enjoyed the show, and did let me clap with him at the end. He did sign Fresh Beat a few times and snuck us a few shy smiles.
After the show we gathered up our crew - we met Aunt Suzie and her crew there, and we headed backstage. It was hot, and crowded; but this did not distract Isaac from his mission - to see “Shout”. After the band came out they started greeting kids, Isaac stood at the front and watched for a while, then decided to take action and attempt to slide behind the DJ to get to his target. While this tactic did not work, in intercepting him I realized his feeding tube had come out – seriously!! After a brief moment of panic we found our stash of tape and taped it in place to keep the hole (stoma) from closing. Our Aunt Suzie went back to the DJ and worked some magic to get Isaac and Talia to front of the meet and greet line……. this is where it gets good
As soon as Isaac approached our new friend Shout said “is that Isaac?” – seriously, he recognized him. The whole band was so incredibly kind and interested in Isaac (his stunning good looks didn’t hurt him there!). They all took a moment to personally greet him, and even though he played the shy guy role I think they knew what an amazing kid he was with just one look Isaac didn’t want to look up for pictures, but we still got some good ones. It was awesome to give Shout a big hug and thank all of the band for making Isaac’s hospital stays and home treatments easier.
I can’t say enough about how incredibly genuine the band was. Twist told Isaac he’s the bravest boy, and they were all sincerely interested in Isaac and his story. Seeing his excitement when they entered the room, in spite of his shyness in person with them was heart warming for us. We put him through so much, and we are a part of so many negatives in his life – we can’t thank Shout enough for allowing us to be a part of a positive!
We took a few awesome pictures – the one below brought tears to my eyes, the sincerity shown by the band is beautiful.