We had 10 fun days at home before arriving back in Minneapolis Wednesdsay night. As always, it is nice to be back and see friends – but so hard to be away from family and friends back home.
Isaac had his OR date with Dr. Hess this morning. He still has a small fistula tract, so he still has a red tube protruding from his side! Dr. Hess changed it out, and told me to call in a week – if nothing comes out of the tube we can pull it out at home. If it does put anything out we’ll have to see what Dr. Hess’ plan is, I’m guessing it will somehow involve Isaac returning to the state of Minnesota. Dr. Hess did tell us in no uncertain terms today that Isaac is not to have any dilations by anyone else, we hope he plans on practicing medicine for a long time – we had already decided nobody else will touch Isaac’s esophagus! This will mean more trips to Minnesota for dilations, but we’ve done it before and can do it again.
Isaac came out of anesthesia beautifully today, none of the wheezing and coughing we saw last time. He came to the PICU with me to visit sweet Vivica and her mom – it was such a relief to see them and hug Vivica’s mom. Vivica is doing well, they are hoping to close her chest up tomorrow and then she should get to start waking up – Isaac peeked in on her from the door and then did a few laps around the PICU – some things never change
Tonight we got to visit with our friend Silas and his parents and see the Osman family (our VA friends), sweet Rachel Osman did an awesome job chasing Isaac through RMH and keeping track of him, a big job for a little girl! Silas has grown a head of beautiful curly hair, and came into town tonight for a photo shoot for his upcoming Make A Wish trip. Jacob Osman is an amazing little boy, we met his family when Isaac was just 6 months old and at the Ronald McDonald House with us – they were there with his older brother Eric who later lost his battle with ALD, they are now there fighting the same fight for Jacob. To say this family is amazing does not do them justice. We only see them in Minnesota, even though they live about 30 minutes away from us, but we are very lucky to have met such a strong family.
Tomorrow we will make a trip to Ireland’s house, because we can’t come to Minnesota and NOT see her
Our return trip to VA is still on for Saturday – we already can’t wait to get home!