He’s home!!

Isaac’s homecomings are always so much fun….. his excitement is contagious! When I got out of the car at the airport he yelled “mama” and showered with me hugs and kisses. Every so often he pulled his head back and stared at me with a smile, such an old soul 🙂
The best is news is he is home for a while – Dr. Hess barely dilated him, and said not to schedule another return in a few months like we have been. We only go back when and if Isaac shows us signs that he needs a dilation!! For the first time in over a year I will not spend his first day back planning the next trip out – wow! This is remarkable, and such a huge step for Isaac.
Dr. Hess took a little peek at Isaac’s right lung, since we’re still unsure how it has healed. He said it is anatomically fine (totally a Dr. Hess statement!) and is not holding him back with capping. He also noted that Isaac’s right rib cage is more fused, he described it as a plate at this point. He said that will inhibit his breathing at some point and we need to figure out how to address it. That kind of sucks, but we knew it would come. So now we work on sending out discs of his MRI (which we don’t have official results on yet!) and figuring out who to consult with. We need an out of the box thinker on this – because Isaac is a pretty out of the box kind of kid! This could require a major surgery, which is also a huge bummer 🙁
Isaac had an MRI to look at his spinal cord and his spine – checking for curvature from the rib fusion and the possibility of a tethered spinal cord – which could also suck, but would need to be addressed. We might be shooting for a “two for” deal on this one!
Regardless of what the results show, and who we need to consult with or how far we have to go we are counting our blessings tonight. Isaac is home, his esophagus is making us so very happy, he has practiced with his trach cap this weekend and he’s a hugging and kissing machine – doesn’t get much better than that!

It's only fair to share...Share on Google+Pin on PinterestTweet about this on TwitterShare on FacebookEmail this to someone
You are not authorized to see this part
Please, insert a valid App IDotherwise your plugin won't work.

Leave a Reply

Your email address will not be published. Required fields are marked *