Esophaversary!

Isaac, with a new esophagus!

This week we actually missed the anniversary of Isaac’s esophagus being connected, it was October 2nd. The photo above shows him literally hours after that amazing, long awaited moment – it’s not pretty, but it was the most beautiful moment of his life.
For almost a year we had fought for this esophagus. We learned how to fight, and how far we were willing to go to get Isaac fixed. In all honesty, when he was born we didn’t get it. We thought we were just waiting for him to grow and gain weight, so that he could simply have a surgery and get an esophagus. We had NO IDEA. We had no idea we would ultimately have to make a decision to take this baby halfway across the country to get him the care he deserved (the nurse that gave us the courage to make that call will get her own blog post SOON – because really, the woman who saves your baby’s life deserves that!).
What we thought would be easy, was not. The early surgeries to attempt to connect and stretch Isaac’s esophagus actually damaged it further, had we not taken Isaac to Minnesota I’m not sure he’d have an esophagus now.
For a few years we celebrated this day. When Isaac was initially connected we invited friends and families to send us a picture of them “cheersing” esophaguses – and we still have those photos in his scrapbook. It was a big deal not just because he could swallow, but because of what we had been through as a family to get him there. We had endured distance, no paychecks, little sleep, long hospital days and lots of heartache to get that esophagus. It was something we couldn’t forget.
This year we forgot, just like that. I think it’s because we finally left crisis mode. We are comfortable, and finding our way to normal. We are used to Isaac’s esophagus (and all of the drama it brings with it!). I think forgetting this anniversary means life is good. The esophagus isn’t the focus of our day – and that’s nice.
To celebrate today Isaac ate 3 skittles, he ATE them 🙂 He’s making strides, and they are huge!
Monday he heads to Philadelphia, for a week of testing to determine the next step for his ribcage, positive thoughts are appreciated!

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