The energy in the room was unreal. Even at 5, Isaac felt it. He cheered wildly along with the crowd, as usual – he seemed to understand something so much deeper than he should. Seeing the President speak, so close to us, about something so important to us (lifesaving, in fact) was a remarkable experience. It was one we will treasure for a very long time.
Isaac is remarkable, because he has the opportunity to be. He has the opportunity because he has access to the care he needs. He knows how deeply he is loved, and the lengths that we will go to in order to give him those opportunities.
Being in a room with the President who has helped us to help him was inspiring. We have a lot more work to do, and now we know we need to do it.