Merry Christmas!

Amongst a million other things, Isaac has taught us very important lessons about the meaning of Christmas. He has officially spent two Christmas’s in the hospital, which is two too many for a five year old. The only major holiday he has not spent in a hospital so far is July 4th, and we’re hoping to keep that one safe in the future!
The second Christmas Isaac spent in the hospital was devastating, for me. I made it a much bigger deal than it was, and he really was sick enough to need to be there. I realized in the middle of the night, just a few hours before he would have been opening presents that it really didn’t matter. On Christmas Day we had a steady stream of family in and out of Isaac’s room, and it was full of love. I stopped feeling sorry for Isaac (and myself) and focused on what we had. We had an amazing family and network of friends, a wonderful hospital just a few minutes from home that could care for Isaac (and nurses that came in while I was rocking him at 3 a.m. to make sure I got first pick of gifts for him since he’s so loved there!), and we had Isaac. It didn’t matter when he opened his presents, or whether he realized it was Christmas – it mattered that he was with us, and we were all together.
I go out of my way each year to take part in every holiday activity we can, because I never know when Isaac could get sick and miss out, and I want him to get all he can just in case. We have baked cookies, baked homemade Christmas presents for everyone he loves, decorated the house, experienced the Elf on the Shelf, visited Santa a few times, participated in a Christmas Sing Along……… and today Isaac participated in his very first Christmas Pageant! He was cutest little lamb in the house! Something so normal for any other kid was a huge achievement for Isaac. The things he has always missed out on are open to him now, and we are having so much fun enjoying it with him.
Tonight, he is snuggled in bed waiting for Santa, so normal 🙂
We are grateful for another wonderful year with 3 amazing kids, and grateful for the love and support that still pours in for our favorite little superman.

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