For obvious reasons (inability to swallow being top!) Isaac has had a feeding tube his entire life. This tube has either been a G tube or a J tube.
We have developed a love/hate relationship with Isaac’s tubes. They keep him alive, this we love. We can offer him a variety of nutrition, and often blend food to give him into his tube.
Unfortunately these tubes clog often, and depending on the type have to be changed by a radiologist. We keep a stockpile of tubes in our basement, as local hospitals don’t always have them available. Isaac HATES having his tube changed, you can imagine that having a tube pushed through a hole in your stomach and threaded into your intestines while you lay flat on a table probably isn’t very comfortable.
In the end, our super tubie is who he is because of his tube, and we are grateful for that.