Once a Preemie……

newborn Isaac

newborn Isaac

The month of November is prematurity awareness month, November 17th is Prematurity awareness day. In honor of these events it’s only fitting to tell Isaac’s birth story….. which really begins about 13 weeks before birth!

Early in September, 2008 we excitedly went to an 18 week ultrasound, ready to find out if we were having a boy or a girl. During this ultrasound an amazing ultrasound tech detected a problem, Isaac had no visible stomach. She was on her game enough to know this meant more, and while we were excited to find that Isaac was an Isaac, this was when our journey began.

We were rushed into an appointment with a maternal fetal specialist – which turned very scary and daunting as the doctor announced “this is bad, we need to discuss termination”. At that very moment we made it very clear that termination was not an option and we needed to know everything we could about Isaac.

The problem with EA babies is that they don’t swallow, so amniotic fluid builds and builds, which can (and often does) cause premature labor. In our case, mommy also had placenta previa, which meant a C Section was inevitable, and also meant an early labor could be life threatening for both of us.

We were blessed with amazing prenatal care, and doctors who researched this rare birth defect just as furiously as we did. Ultimately, Isaac did create a little trouble, earning us a hospital stay on complete bed rest in early November of 2008. After a few weeks of bed rest he upped the ante enough that we were rushed in for an emergency c section the night of November 25th.

Our boy was due to arrive sometime in late January, but he just couldn’t wait. He weighed in at 3 pounds, 3 ounces and was packed full of personality from the start. I like to think he just couldn’t wait to start making his mark on the world 🙂

Today, that preemie weighs in at a whopping 45 pounds…… he attends kindergarten and loves Sunday School. He is a lover of music and dancing and his smile can light up a room.

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